by Henrik Thybo Christesen & Paul Thornton (Scientific Advisory Board)
It is vital to emphasize that all KH patients should stick to the rules given in each country.
KH patients are not more likely to experience more severe symptoms from the COVID-19 virus. Neither are they at a heightened risk of getting infected.
KH-families should focus on preventing the virus. If they get infected they need to not seek medical care unless they are having difficulty breathing or shortness of breath. However, if the KH patient develops ketones or glucose below 70 mg/dL (3,9 mmol/L), and they cannot drink sugar containing fluids, then they need to call their physician and go to the ER like usual.
Infected KH-patients should be focussing on the following:
- Fever control
- Drinking sugar containing fluids
- Avoidance of fasting
We also recommend checking glucose and ketones more frequently when well, and be aware of what their physician has told them about the duration of fasting when sick.
Henrik Thybo Christesen
Consultant in Pediatrics, clinical professor, leader of The Complex Hypoglycemia Center, Odense University Hospital, Denmark
Head of Scientific Advisory Board at KHI.
Medical Director, Endocrinology and Diabetes & Medical Director, Hyperinsulinism Center at Cook Children's Medical Center, US
Advisory Board Member at KHI